to Taryn's updates.
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Friday, March 3,
Taryn is ill again..she was fainting and having the severe headaches
Since she could not be aroused from the last
Lee Ann and Greg took her back to John Hopkin's hospital
That is where the surgery for chiari was
performed last year.
She was there for 2 days, with
all kinds of tests again.
The MRI's show no blockage in the
spinal fluid which was the original problem.
She is still
having the headaches and is now "flat in bed" for awhile.
She missed a retreat with her school class
upset about that.
Lee Ann has mentioned that stress may have triggered this
Taryn is a very intense young lady..always
concentrating hard on her school work
and maybe trying to do
too many things at once.
Anyway, there is a
world-renowned hospital in New York called the Chiari
I joined the chiari forum on the net last
when I learned of Taryn's problem.
who contribute to this forum are remarkable!
They have seen first hand how bad it is..
either from having
it themselves or members of their families having
I will keep you informed here.
sent mass mail out today, asking for your prayers for Taryn.
have told Lee Ann that if Taryn needs to go to NY,
either go with her or take over at her house.
I'm sure Greg
would want to go.
That's all can tell you for now--except
Dr. Ben Carson, who is know worldwide and practices at
came in to see Taryn when she was there, she was very
Lee Ann's best friend, Debbie, is a
and who has experienced real illness problems with her
~has always been there when she thought she was
and has been a lot of support for Lee Ann and Taryn and
God bless you, Debbie!
Taryn's headaches were so
bad yesterday that
Greg took her back to John Hopkin's
hospital early this morning.
The headaches this time were a
result of the spinal tap yesterday
She is back home
The Doctors told Lee Ann that these blood patches
are successful 9 times out of ten--good news!
said the headaches seemed to be better and
the Doctors sais
they will know for sure by this evening or
I will add to this as I get any news from
is home and feeling better.
They think the blood patch was
They, as I said, will know more
I just talked with Pat, Lee Ann's beau--
their school is
closed today so Pat is with her-wonderful young man...
Lee Ann had gone out to get some tylenol-Taryn has a slight
He said she had been better--no headache
but they went to a
hot tub near home thinking it would relax her back.
She's had back problems for a few days.
They stopped at Starbucks for coffee
and Taryn felt a little
headache coming on, so they came home.
They were playing yahtzee when I called.
She is better though, thank God..
I asked Lee Ann where they
go from here..
she has no idea and will just seek
the advice from the Doctors at John Hopkins.
IN THE EVENING:
Taryn is feeling much better.
does have a cold, but the headaches are gone for
She will stay home from school
Lee Ann has to return to work at the
so Dad will be the care-giver
The news remains pretty good for
She is slowly making up her school work.
has jogged around her neighborhood-and said she felt better after
Prayers do help!
I learned from Lee Ann
yesterday that Taryn is having problems again.
They took her
to Kennedy Kreiger, a facility of John Hopkins
The text below is part of email from Lee Ann to
Quote: We met with a neurologist yesterday at Kennedy
they are definitely going down the migraine route
I'm kinda skeptical and so is Taryn,
don't really have anything else to go on right now.
She is going to start on a prophylactic migraine
and has to keep a log of things she eats, salt
.....she's having another MRI/MRA done and has a
follow up in two weeks.
We'll see-she needs a lot of upbeat
people around her right now
--getting very down.(end
Taryn is having the MRI/MRA today..
I will post here the
The meds made her sick last
Lee Ann is checking with the Dr. today for
More as soon as I hear something.
Taryn is having problems now.
She did go to school
but has been experiencing problems that are
Lee Ann is trying to get her an appointment
the Chiari Institute in NY now.
She is in touch with people
there who will
try to set Taryn up for a
Please say a prayer that she will be
Institute~~from what I hear in the chiari forum
the very best..they only treat chiari patients.
Sunday, April 2,
for all your support and prayers.
APRIL 3, 2006
I received this email from Lee Ann today-see
Quick update---Taryn has had 8 good days and survived the SATs
on Saturday---they went from 7:45 to 1:00!!
They're a lot longer than when we took them.
goes to a college fair today that I'm going to "chaperone"
the event she starts to feel "yucky"
and she has a follow up
with the neurologist tomorrow.
We havn't heard
anything from the test results
so I'm assuming everything
Anyway, have a good day and I'll be in
I just talked to Lee Ann...
she said the neuro is calling
these spells now
"Complicated migraines"..she is still going
to TCI, we think.
She has finished filling out the required 18 pages of forms.
I am anxious for that and to find out
what they say at the
She will most likely go the end of the month.
The neuro says that these migraine spells are probably
she had the chiari..making them a lot worse than an
..although all chiari tests were negative
It is a complicated thing--nothing simple about it.
Taryn still passes out when she has these episodes
now for 10 days..
so we are hoping so much the new
the neuro put her on will be
Each year at her school, a Senior pins a Junior
think is an achiever and who they like a lot.
Her boyfriend, Pat, is a Senior and he is crazy about Taryn
He will "pin" her..
I can't wait for tomorrow (Thursday) for the "pinning"..
is so excited about it..
So, it is a "one day at a time, we will wait and see" thing..
We will just continue to put her in God's hands and pray a
I am still asking for your prayers..
and thanks so much for
your wonderful emails of encouragement.
I am happy to say the
"pinning" went well!
Lee Ann said Taryn looked beautiful..Pat
The new faculty members were pinned also
and the Mothers too, a surprise.
Pat was more
nervous pinning Lee Ann! *LOL*.
No other news today but that..If so, I will update later
Lee Ann has promised pictures via email
will put them on here when I get them.
Lee Ann will leave for
Florida tomorrow early
with Taryn and Tori..
will not be with us on Easter for the first time.
I am very
glad, however, they will do nothing but rest, eat and
Kacey will stay home with Dad
so we will have
them for Easter dinner tomorrow.
We're looking forward to
Greg has always been like a son to us!
Lee Ann tells me that Taryn will go back to work
is out and she will drive.
The attacks usually give her a little warning
and she had one
once while driving..
she pulled over to the side of the road
called Lee Ann, who picked her up.
I'm so glad she will get back into some normal
The prom pics will be in the mail to me
I will post them here..so look for them
the next week or so.
THANKS FOR HANGIN' IN WITH
Monday, June 26,
Hello again..it's been a
Taryn is doing good..
she's working and
driving her car.
Several weeks have passed with no
We are so thankful for that!
daughter, Lee Ann, doesn't send
those prom pics, I'm going to
nag, nag, nag!
I am so anxious to see them and I hope you are
Sunday, July 2,
Taryn has had a "spell or
She was at the beach and was taken to
the hospital there.
The meds didn't work so she was taken to
and given medication which
She is okay now..one day at at
Thursday, August 17,
Good news! Taryn is going to play soccer again!!!
thought it is not a good idea
but as Lee Ann said last
~~"Mom, it isn't fair to keep her in a
NOW, I AGREE!
She not only made the team,
she will be Captain!
(This does not mean that we do
not have to watch for problems..cross your
Tori will be a freshman and
made the VARSITY team!
All 3 girls are very
Kacey is a whiz at basketball..so good luck,
Taryn continues to do well.
She is back on the soccer team, this time as Captain.
I ask for your continued prayers for her.
Taryn is very happy and so far, feeling good.
Tori, although in her freshman year of high school,
is now a
member of the VARSITY soccer team.
Needless to say, that household is very happy about all
Donovan is working and feeling fine..
thanks to all of you for
prayers for Donovan and Taryn..
are the dearest friends anyone could have.
It is with sadness that I tell you that Pat and Taryn have called it
We all love Pat..but he is going to college and
is a Senior so maybe it's best.
They have never
dated anyone else
and I know it was hard.
moving on with her life
~~concentrating on school as she
There is one problem..Pat keeps calling and
This only makes her angry..rightfully so
they agreed to call it a day.
I don't think
Taryn is one to wallow in self-pity.
She never has been and if
she can cope with Chiari
she can cope with anything! Stay
I'm proud to say that Taryn
received Honorable Mention for
Maryland Distinguished Scholar!
She scored very high
on her SAT tests
despite the many adversities at the time..GO,
She is being "wooed" by several colleges
because of her
achievements, academic and
Saturday, October 7,
I hope all of you will see
page below and look for Taryn Elman's name..we are so
The Gazette Article
You will see her name in a
couple of paragraphs.
Tori was selected for the
to be in the Homecoming Queen's Court-we
are very proud.
Congratulations-Taryn and Tori!
Friday, January 26,
Taryn fainted a couple of weeks
Lee Ann contacted her Doctor and she
even think it was necessary to see her.
I guess these spells
will be expected from time to time.
Tank, her English bulldog,
licked her face and revived her!
to keep her in your prayers..thank you!
Current update is HERE